Links

MEDIA
View our Fibromyalgia Awareness Commercial
Check our YouTube Channel

AUSTRALIA

Tweed Heads CFS/ME/FMS Support Group
South Tweed Sports Club
1st Friday of the month, 10:45amGroup Leader: Bronwyn Sonter
Phone: (07) 5593 9319
Email: bronwynsonter@hotmail.com


The website: www.mecfs.org.au

The c’tee members: http://mecfs.org.au/about-us/,

Facebook: https://www.facebook.com/mecfsau/

 


 

The ME/CFS & FM Association of NSW is a newish, 100% volunteer run not-for-profit organisation; a copy of our Incorporation Certificate is attached. We are just getting going after setting up our technology infrastructure first, it enables us to operate on an extremely small budget, with minimal healthy human resources, no physical office and no rent or employee expenses to pay. We are utilising virtual office facilities in the cloud, memberships are being done only online via our website, we only accept income by electronic means and virtually all our communications are done over the internet using our domain named emails with some phone calls. Our committee meets physically once a month in Sydney. We have an affiliated Facebook support group ME/CFS & FM NSW Support Group with 280 members and that support group also runs a Facebook Page Chronic Fatigue Syndrome NSW which has good traffic.

AFFILIATED SUPPORT GROUPS

BRISBANE & LOGAN CITY

Fibromyalgia Support Meeting, 3rd Thursday of the month at Logan Hyperdome Library,

66-70 Mandew Street, Shailer Park – 2 pm

Judy Everett

Info packs, monthly newsletter & phone support

(07) 3806 5601

BRISBANE WESTME/CFS/FM/MCS Support & Activism Sylviesj.dakini@hotmail.com (07) 3876 7938

CROWS NEST Support Group

Phone support only

Group Leader: Berrie Cawthorne

(07) 4698 4715

FRASER COAST FM/CFS/ME Support Group

Maryborough Community Health Centre,

Conference Room, inside front door and turn left

167 Neptune Street, Maryborough

1st Monday of each month from 9.30 – 11.30am

(except January)

Judy Vickers

Anaree Nelson

Jenni Ghill

CONTACT 9am – 3pm

painfatiguefogfc@hotmail.com

(07) 4121 6910 (07) 4123 5518 Mobile: 0409 453 397

(07) 4123 6803

Mobile: 0499 465 229

FIBROMYALGIA, CFS/ME Gold Coast

2nd Thursday of the month 11am – 1pm

@ Southport Library

Group Leader: Carol Baker

Mobile: 0406 154 766

LOGAN ME/CFS/FM

Phone or email only

Group Leader: Lee Rowe

Telephone between 8.30am -12pm or 7pm – 9pm

leeann50@bigpond.net.au

(07) 3200 8223

NORTHERN SUNSHINE COAST (FM/CFS/ME)

Self Help Group

Phone support only

Group Leader: Sandy Eastman

(07) 5471 0039

ROCKHAMPTON

Phone Support Only

Marilyn Gavranovic- leviti@bluemaxx.com.au

Mobile: 0403 391 388

ROSEWOOD

FMS Support Group

10 am—11.30 am 3rd Thursday of every month

Contact person Judy

Rosewood Community Centre School St

(07) 5464 2227

(07) 5464 2965

TAMBORINE MOUNTAIN Support Group

Phone Support Only

Group Leader: Jeni Uhlig

(07) 5545 3134

TROPICAL NORTH QUEENSLAND CARDWELL rdickson@qldnet.com.au INNISFAIL

 

SMITHFIELD cfs_me_tnq@yahoo.com.au

TOWNSVILLE (phone support)

Joy

Gwen farnthqldfibromyalgia@bluemaxx.com.au

Peter

Ashley ahinds@smashman.net

Mara mmhogan2@bigpond.com

(07) 4066 0178

(07) 4063 2334

(07) 4057 5920

(07) 4778 3560

(07) 4724 1062

TWEED HEADS CFS/ME/FMS Support Group

10.45 am 1st Friday of the month

South Tweed Sports Club

Group Leader: Bronwyn Sonter

bronwynsonter@hotmail.com

(07) 5593 9319

 

NATIONAL BODIES
National Centre for Neuroimmunology and Emerging Diseases
Griffith Health Institute
G40 Rm 9.19-9.26
Griffith University
Gold Coast Campus
T: 56789283
E: ncned@griffith.edu.au
Website
Facebook
ME/CFS Australia Ltd. Website: http://www.mecfs.org.au/
Phone: (03) 9793 4500
The national body is hosted by
ME/CFS Australia (Victoria)
Check their website for additional contact details.

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AUSTRALIA – STATE & REGIONAL INCORPORATED ASSOCIATIONS
New South Wales Website: ME/CFS Society of NSW Inc
Email: office@me-cfs.org.au
Victoria Website: ME/CFS Australia (Victoria)
Email: admin@mecfs-vic.org.au
Tasmania
(via Victorian association)
Website: ME/CFS Australia (Tasmania)
Email: admin@mecfs-tas.org.au
Northern Territory
(via Victorian association)
Website: ME/CFS Australia (Northern Territory)
Email: admin@mecfs-nt.org.au
Australian Capital Territory Website: ACT ME/CFS Society Inc
Email: See website for current contact details.
South Australia Website: ME/CFS Australia (S.A.) Inc
Email: sacfs@sacfs.asn.au
Western Australia Website: ME/CFS Society of WA Inc.
Email: See website for current contact details.
Queensland Website: ME/CFS/FM Support Association Qld Inc.
Email: mefmtba@bigpond.com

AUSTRALIA – OTHER USEFUL SITES
MECFS Legal Resources Australian website that provides legal resources for those with ME/CFS
Centre Link For disability, sickness & carers financial support. Phone: 132717
Click here for a page that provides a list of links to Centrelink web sites for information on claims for Sickness Allowance, Disability Support Pension and Mobility Allowance.
DIAL Disability, Information and Awareness Line
Email: DIAL@families.qld.gov.au
Families, Youth & Community Care Dept.
Phone: 1800 811 810 (Office Hours)
or 1800 637 711 (Crisis Care)
Queensland Health Toowoomba area:
(07) 4631 6211 Toowoomba Hospital
(07) 4631 6181 Community Health Service
(07) 4631 6805 HAAC (Home & Community Care)
justlook.org.au Lifeline’s Service Finder
Queensland Council of Carers Phone: (07) 4662 5459 (Darling Downs)
or 1800 242 636
WhatsUp in Disability An internet project for people with disabilities,
for carers on the Downs and Lockyer Valley
email: admin@whatsupindisability.org.au
Legal Aid Services Phone: 1300 651 188 (Legal Call Centre);
(07) 4632 8471 (Toowoomba Community Legal Service)
Toowoomba Transport Assistance (07) 4639 3983 Transcare (Social Transport Needs)
(07) 4636 5324 Toowoomba Community Care Transport
Commonwealth Carelink Centre Phone: 1800 052 222
Web: http://www.commcarelink.health.gov.au
Commonwealth Rehabilitation Service Phone: 1800 017 925

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AUSTRALIA – OTHER ORGANISATIONS
ASEHA Qld Inc. Allergy, Sensitivity and Environmental Health Association Inc.
ACTA Inc. Australian Chemical Trauma Alliance Inc.
fmscfs-support-4-me.org.au Frankston Self Help Support Group (Melbourne)
– for sufferers of FMS and CFS

AUSTRALIA – ME/CFS RESEARCH BODIES
BIOSCREEN
Company formed to develop the clinical applications of CPRU research.
Email: bioscreen@pacificmedical.com.au
Phone: +61 3 8416 0377
Fax: +61 3 8416 0355
Postal: PO Box 5088 Burnley Victoria, Australia 3121
Location: Level 1 263 Mary Street, Richmond, Victoria, Australia 3121
Adelaide Chronic Fatigue Syndrome Research Group Email:garry.scroop@adelaide.edu.au
Phone: (08) 8303 5331 or 0412 486655
Fax: (08) 8303 3356
Postal: Dept. of Physiology, University of Adelaide, SA 5005

INTERNATIONAL – NATIONAL SUPPORT ASSOCIATIONS
New Zealand
ANZMES Associated New Zealand ME Society
Canada
National ME/FM Action Network See the website for email instructions
South Africa
ME Association of Southern Africa See website for contact details.
UNITED KINGDOM
Action for ME (UK) See website for contact details.
The ME Association (UK) See website for contact details.
USA
CFIDS Association of America See website for contact details.
Italy
Associazione CFS Italian CFS Association

OTHER INTERNATIONAL ORGANISATIONS
BRAME Blue Ribbon for the Awareness of ME (UK)
Tymes Trust The Young ME Sufferers Trust (UK)
Nightingale Research Foundation The Nightingale Research Foundation (Canada)
CFSAC Chronic Fatigue Syndrome Advisory Committee
– US Department of Health and Human Services

OTHER USEFUL WEBSITE ADDRESSES
www.mecuperate.co.uk Site set up by Jennifer Barber “to help herself and others live with ME/CFS”
M.E. Support UK site providing information, advice and support.
Prohealth US supplier of dietary supplements;
Site has general and dietary information for ME/CFS/FM sufferers.
CFIDS & Fibromyalgia Self-Help Dr Bruce Campbell’s self-help website (USA)
WorldLingo Translation Service Commercial translation service
– resource for multilingual ME/CFS articles
Co-Cure List server for ME/CFS articles
(USA-based, international scope)
An Eye Opening Guide to Chronic Fatigue Syndrome An article with links to some official USA sources
On Co-Cure: Canadian ME/CFS Clinical Guidelines [PDF file]
Youth Corner, National ME/FM Action Network (Canada)
Youth Home Page, CFIDS Association of America
Yahoo Group for Australian teens with ME/CFS

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