Raising Awareness

  • We have had a call line for people to ring since 1991. All Volunteers, mobile by Rhonda McInnes
  • We have held support group meetings once a month (except for January) since 1991 (they are currently postponed at the moment, due to COVID-19).
  • We have had a monthly, then bi-monthly journal from 1991 – 2003 Joan Sheath Editor and from 2003 till today Lyn Wilson as Editor.  The Journal goes to members, state associations, Queensland Health, doctors, the State Library, and the National Library, they also go to England, the US, Canada, Denmark, the Netherlands, South Africa, and New Zealand.
  • A website since 2003 run by Adam Bayard, John Bowden then Kirsty Beeching
  • We have had a Facebook Page since 2011 run by Rhonda McInnes

2015 – Present 2014-2010 2009-2005 2004-2000 1999-1991

20 May 2021Theresa Clark and Lyn Wilson met with the state Shadow Minister for Health and the Opposition Health Policy Advisor due to the letter for Awareness Day.
12 May 2021International ME/CFS/FM Awareness Week the bridges and buildings were lit up blue and purple in Brisbane, Toowoomba, and the Gold Coast.
Sent out 143 awareness letters to politicians
26 media releases for awareness week
26 November 2020Professor Donald Staines and Professor Sonya Marshall-Gradisnik from the National Centre for Neuroimmunology and Emerging Diseases (NCNED) at Griffith University had a webcam meeting to let sufferers know about their research.
15 May 2020We received a letter from Queensland Health saying our association was officially an essential service during the worldwide pandemic.  Which means they recognised that sufferers of ME/CFS and Fibromyalgia were important enough to have someone help them especially during a pandemic.
12 May 2020International ME/CFS/FM Awareness Week the bridges and buildings were lit up blue in Brisbane, Toowoomba, and the Gold Coast.
Kathy Dallest ran a webinar “Managing Pain, Optimising Movement” presented by Paul Trevathan, Physiotherapist.
Sent out 143 awareness letters to politicians
26 media releases for awareness week
10 May 2020Theresa Clark did a radio interview for Awareness Week
12 March 2020We sent out letters and emails to all the doctors on our doctor’s list to up date it but the next day COVID19 hit so we didn’t get many replies
5-6 June 2019Lyn Wilson attended a two-day conference in Cairns at the Health Consumers Queensland Annual Forum and met with the Minister for Health.
14 May 2019Professor Donald Staines from the National Centre for Neuroimmunology and Emerging Diseases (NCNED) at Griffith University came to Toowoomba to give an update on the current research they are doing.
12 May 2019International ME/CFS/FM Awareness Week was full of activities that were held in Toowoomba, Brisbane, and the Gold Coast.
Theresa Clark did a radio interview for Awareness Week
Sent out 143 awareness letters to politicians
26 media releases for awareness week
9 May 2019Theresa Clark did a radio interview for Awareness Week
8 May 2019Lyn Wilson attended a Think tank on developing a clinical pathway and multidisciplinary care model for Australian patients suffering from debilitating symptom complexes attributed to ticks (DSCATT).
20 April 2019We sent brochures out to every doctor in Toowoomba so that they could give them to sufferers of ME/CFS and Fibromyalgia so they would be able to get a free information kit or just call us at the office and come to support group meetings, so they do not feel so alone.
8 March 2019Kathy Dallest, attended a seminar delivered by Professor James Baraniuk, MD, Director, Chronic Pain and Fatigue Research Centre, in Washington DC
1 March 2019The committee of the ME/CFS/FM Support Association Inc., announced that Lyn Wilson will be representing Queensland as a board member on ME/CFS Australia Ltd., which is the National Association for sufferers of ME/CFS and Fibromyalgia.
6 February 2019Professor Sonya Marshall-Gradisnik and Professor Don Staines again returned to Toowoomba and gave us an update on the results of their latest research findings
26-27 November 2018Theresa Clark and Lyn Wilson attended the CFS/ME International Conference 2018.  This conference showcased the research achievements of the National Centre for Neuroimmunology & Emerging Diseases, developments in diagnostic tests, discoveries in treatment and provide a forum for international research leadership
2 November 2018Theresa Clark organised another screening of Unrest at the Toowoomba City Library.  Professor Sonya Marshall-Gradisnik and Professor Don Staines again attended and gave us an update on the results of their latest research findings prior to the screening of the Unrest film. 
29 September 2018Theresa Clark and Lyn Wilson attended a cocktail party after receiving an invitation from the Vice Chancellor of Griffith University.
8 September 2018Kathy Dallest and Lyn Wilson attended the Health Consumers Queensland 10-year celebration at Parliament House and Lyn met up with the Health Minister. 
22 August 2018There was a Friends of Parliament ME/CFS meeting with politicians and Professor Don Staines and Professor Sonya Marshal-Gradisnik in Canberra. The event was hosted by the new Parliamentary Friends of ME/CFS, founded by Greens Senator for Western Australia, Jordon Steele-John and co-chaired by Labor Senator for Queensland, Claire Moore, and Liberal Senator for Tasmania Jonathon Duniam.
20 July 2018Lyn Wilson attended the Queensland Clinical Senate Committee meeting the topic was Stewardship of Opioids.  This means what the rules will be changed to for the use of Opioids in the treatment for people with Chronic and Acute Pain.
14-15 June 2018Kathy Dallest and Lyn Wilson attended the 2018 Annual Forum of Health Consumers Queensland (HCQ) on the Evolution of Engagement where they met up with the Health Minister.
12 May 2018International ME/CFS/FM Awareness Week was full of activities that were held in Toowoomba, Brisbane, and the Gold Coast.
Theresa Clark did a radio interview for Awareness Week
Sent out 143 awareness letters to politicians
26 media releases for awareness week                                              
Theresa Clark and Rayleigh Winten arrange a viewing of Unrest in Toowoomba
23 April 2018Our association hosted another event which included David Tuller as a guest speaker on the Gold Coast with Kathy Dallest.
20 April 2018Theresa Clark attended a lecture by David Tuller in Brisbane which was co-hosted by our association.
16 March 2018Lyn Wilson attended the Arthritis Queensland 19th Annual Health Professionals Seminar. In all the breaks giving out information kits on fibromyalgia to the doctors, nurses and allied health professional that attended. 
8 February 2018Lyn Wilson attended the Queensland Health and Health Consumers Queensland Patient Travel Subsidy Scheme Non-Government Organisation Information Session
10 October 2017Association sent out 277 packets with brochures for both Public and Private hospitals and Commonwealth Heath offices throughout Queensland
5 September 2017NCNED came to Toowoomba Professor Don Staines and Professor Sonya Marshall-Gradisnik updated us about their research
25 July 2017Theresa Clark and Lyn Wilson attended the National Pain Week celebrate Purple Patch – Australian Pan Management Association
18 May 2017Lyn Wilson attended the Health Consumers Queensland Annual Forum on the Power and Passion: Culture change through consumer engagement and partnerships in Townsville and met up with the Health Minister.
12 May 2017Theresa Clark and Lyn Wilson went to Griffith University at the invitation of Professor Don Staines and Professor Sonya Marshall-Gradisnik to see the actual research being done by the National Centre for Neuroimmunology and Emerging Diseases and to celebrate International ME/CFS/FM Awareness Day.
The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Light up the bridges for awareness week, Gold Coast, Townsville, Mackay, Logan, Brisbane, Toowoomba and NCNED
Sent out 143 awareness letters to politicians
26 media releases for awareness week
9 May 2017Theresa Clark and Lyn Wilson did a ME/CFS/FM Awareness radio interview for International ME/CFS/FM Awareness Week
14 March 2017Lyn Wilson attended the Health Consumers Queensland Consumer and Community Engagement Framework Launch.
10 March 2017Lyn Wilson attended the Arthritis Queensland’s 18th Annual Professional Seminar giving your information kits to doctors, nurses, specialists, and allied health professionals.
4 March 2017Lyn Wilson attended the Harlaxton Neighbourhood’s International Woman’s Day celebration. Lyn gave a talk and handed out information kits to people present.
14 June 2016Lyn Wilson wrote an article on Fibromyalgia “Australia Primary Health Care Nurses Association
12 May 2016The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Sent out 143 awareness letters to politicians
26 media releases for awareness week
16 October 2015Rhonda McInnes, Theresa Clark and Lyn Wilson attended a meeting at Lyn’s house with Anthony West from Queensland Health’s funding and contracts department re new funding
13 October 2015Rhonda McInnes and Lyn Wilson attended a reception at Parliament House where we met the Premier and Health Minister – funding restored
6 October 2015Lyn Wilson attended the Health Consumers Committee Stakeholder Forum – Health Consumers Queensland
27 August 2015Lyn Wilson had a Webcam meeting with Board Connect
22 May 2015Lyn Wilson had a meeting with Dr Anthony Lynham MP
21 May 2015Lyn Wilson attended the Disabilities in Education Review Workshop
12 May 2015The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Sent out 143 awareness letters to politicians
26 media releases for awareness week
9 May 2015Theresa Clark and Lyn Wilson did a ME/CFS/FM Awareness radio interview for International ME/CFS/FM Awareness Week
21 April 2015Lyn Wilson had a meeting with John McVeigh MP 
8 January 2015Rhonda McInnes and Lyn Wilson attended the Darling Downs Vintage and Veteran Car Club in Toowoomba and Lyn Wilson gave an ME/CFS/FM Awareness Talk

5 September 2014Lyn Wilson presented a ME/CFS/FM Awareness Talk – Tweed Heads CFS/ME/FMS Support Group
29 August 2014Lyn Wilson attended the Consumer Health Forum Australia Workshop on Strategic Plan and Priorities – Brisbane
20 June 2014Lyn Wilson attended the Medicare Local Workshop at Darling Downs Club Toowoomba
12 May 2014The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week
Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Sent out 143 awareness letters to politicians
26 media releases for awareness week
10 May 2014Theresa Clark and Lyn Wilson did a ME/CFS/FM Awareness radio interview for International ME/CFS/FM Awareness Week
12 May 2013The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Sent out 143 awareness letters to politicians
26 media releases for awareness week
Theresa Clark and Lyn Wilson did a ME/CFS/FM Awareness radio interview for International ME/CFS/FM Awareness Week
22 March 2013Lyn Wilson attended the Arthritis Queensland 2013 Health Professional Seminar – The Management of arthritis and osteoporosis – attended seminar and manned FM information stand – Brisbane.
5 June 2012Lyn Wilson attended the consultation in Toowoomba for the National Standards for Disability Services
12 May 2012The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Awareness Display in shopping center
Sent out 143 awareness letters to politicians
26 media releases for awareness week
8 May 2012Theresa Clark and Lyn Wilson did a ME/CFS/FM Awareness radio interview for International ME/CFS/FM Awareness Week
16 March 2012Lyn Wilson attended the 2012 Health Professional Seminar hosted by Arthritis Qld – What’s New in Arthritis and Osteoporosis & What’s Next? – attended seminar and manned FM information stand.
1 December 2011Lyn Wilson attended a Consumer Representative Workshop on consumer representatives sitting on committees, working groups, advisory bodies and clinical networks and provide input into health policy, planning, service provision and evaluation.
17 October 2011Lyn Wilson presented an Awareness Talk – Laidley Woman’s Group through Queensland Health Ipswich
12 October 2011Lyn Wilson attended a QCOSS meeting in Toowoomba
10 October 2011Lyn Wilson presented an Awareness Talk – Springwood Woman’s Group through Queensland Health Ipswich
4 October 2011Lyn Wilson had a meeting with Lillian van Litsenburg MP re raising profile
29 September 2011Lyn Wilson worked on the Qld Medical Cooling Rebate Campaign Alliance – MS Society – Brisbane
14 September 2011Lyn Wilson presented an Awareness Talk – Toogoolawah Woman’s Group through Queensland Health Ipswich
19 July 2011Lyn Wilson presented an Awareness Talk – Lowood Woman’s Group through Queensland Health Ipswich
1 June 2011Lyn Wilson attended the Launch of Health Consumers Queensland’s Advocacy Framework and Advocacy Toolkit – Parliament House – Brisbane
31 May 2011Lyn Wilson attended a meeting on the implementation of the pain strategy – Brisbane
12 May 2011The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Awareness Display in shopping centre
Sent out 143 awareness letters to politicians
26 media releases for awareness week
12 April 2011Lyn Wilson presented an Awareness talk to Boonah Women’s Health Group – Boonah
21 October 2010Lyn Wilson attended the National Safety and Quality Health Service Standards 6 – 10 workshop which was sponsored by Health Consumers Queensland in Brisbane.
17 October 2010Lyn Wilson gave ME/CFS/FM Awareness talk at Laidley Women’s Group
10 October 2010Lyn Wilson gave ME/CFS/FM Awareness talk at Springfield Women’s Group
8 October 2010Lyn Wilson attended the Director-General’s discussion of the national health reform agenda in Queensland at the Toowoomba Base Hospital.
29 September 2010Meeting with MS Queensland reworking on Medical Rebate Cooling application
28 September 2010Bloods taken for NCNED research
27 September 2010Lyn Wilson presented a ME/CFS/FM awareness talk for TRUST (stroke survivors) at the Toowoomba Base Hospital.
7 September 2010Lyn Wilson attended the Toowoomba Forum for the 2010 Shared Visions regional forum
17 July 2010Lyn Wilson did ME/CFS/FM Awareness talk to Lowood Women’s Group
1 June 2010Lyn Wilson attended the Trial of Advocacy toolkit with HCQ Parliament House Brisbane
25 May 2010Lyn Wilson attended the Health Advocacy Toolkit workshop with HCQ Brisbane
11 May 2010Lyn Wilson attended the Queensland Compact Intersectoral Forum – Qld Government – Highfields
10 May 2010The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Awareness Display in shopping centre
Sent out 143 awareness letters to politicians
26 media releases for awareness week
20 April 2010NCNED CFS/ME Study Professor Don Staines, and Professor Sonya Marshall-Grafisnik came to Toowoomba
14 April 2010Lyn Wilson attended the Launch of National Pain Link by The Parliamentary Secretary for Health, Murray Watt – The Australian Pain Management Assoc Inc – Parliament House Brisbane
8 April 2010Lyn Wilson attended the National Health and Hospitals Network – HCQ & CHF – Brisbane
9-10 March 2010Lyn Wilson attended the Chronic Conditions Self-Management Project – CHF – Canberra

3 December 2009Lyn Wilson attended the Conversation Consumer Consultation Workshop on the draft National Safety & Quality Healthcare Standards
2 December 2009Lyn Wilson attended the Blue Skies Conversation with HCQ
20 November 2009Lyn Wilson attended the Quality Use of Pathology Consumer Consultation
2 November 2009Lyn Wilson presented a ME/CFS/FM Awareness Talk – Red Hatters – Toowoomba
6 October 2009Lyn Wilson presented a ME/CFS/FM Awareness talk to Rosewood Women’s Group – Laidley
24 September 2009Lyn Wilson Attended the Quality Healthcare Conversation National Workshop – CHF – Sydney
18 September 2009Lyn Wilson attended the Advocacy in Queensland Health System – HCQ & QCOSS – Brisbane
4 September 2009Lyn Wilson attended the Quality Health Conversation Consultation Workshop – HCQ – Brisbane
10 August 2009Lyn Wilson attended the Qld Medical Cooling Rebate Campaign Alliance – MS Society – Brisbane
9 July 2009Lyn Wilson attended the Exposure Draft Health Practitioner Regulation National Law 2009
23 June 2009Lyn Wilson attended the Consumer Engagement Forum – HCQ – Brisbane – did presentation and met the Minister for Health the Hon Paul Lucas
15 June 2009Lyn Wilson did ME/CFS/FM Awareness talk Goodna Women’s Group
15 May 2009Lyn Wilson attended the Meeting with Shadow Health Minister Mark McArdle at Parliament House Brisbane
12 May 2009The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Awareness Display in shopping centre
Sent out 143 awareness letters to politicians
 26 media releases for awareness week
28 April 2009Lyn Wilson attended the ME/CFS/FM Awareness Talk – Goodna
2-3 April 2009Lyn Wilson attended the Building a Fair Australia in Tough Economic Times – ACOSS – Sydney
25 March 2009Lyn Wilson attended the Shaping the Health Workforce Project – CHF – Canberra
12 February 2009Lyn Wilson attended the HCQ Launch – Brisbane
21 January 2009Channel 7 made the FM Awareness Commercial
25-27 November 2008Lyn Wilson attended the Joint Medicines Policy Conference – CHF – Canberra – 3 days
6 November 2008Lyn Wilson attended the HCQ Seminar – Brisbane
16 October 2008Lyn Wilson attended the 21st Birthday: Celebrate, Challenge and Change – CHF – Canberra
10 August 2008Lyn Wilson attended the International Leaders Against Pain – NFA – Washington DC America
27 June 2008Lyn Wilson stepped down as Queensland Representative of ME/CFS Australia
20 June 2008Lyn Wilson attended the ME/CFS, and FM talk to Centrelink Assessors – Brisbane
22-23 May 2008Lyn Wilson attended the Looking Forward Looking Back: private health
12 May 2008The Mayor of Toowoomba Councillor Peter Taylor launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk.
Awareness Display in Toowoomba Library
Awareness Display in shopping centre
Sent out 143 awareness letters to politicians
26 media releases for awareness week
15 August 2007Lyn Wilson did awareness talk to Canadian Support Group
June 2007Lyn Wilson attended the Proposed New Government Initiative Called E-Health – CHF – Canberra
12 May 2007Celebrity Charity Auction and Ball, organised by Rhonda McInnes, Lyn Wilson did awareness talk
11 May 2007The Mayor of Toowoomba Councillor Diane Thorley launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk
Sent out 143 awareness letters to politicians
26 media releases for awareness week
15 October 2006Lyn Wilson attended the E-Health – CHF – Melbourne
9-11 October 2006Lyn Wilson attended the National Association Conference – Melbourne are forms & the broader health system – CHF – Canberra
15 July 2006Dr Gary Deed came to Toowoomba to do talk on ME/CFS
12 May 2006The Mayor of Toowoomba Councillor Diane Thorley launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk
Sent out 143 awareness letters to politicians
26 media releases for awareness week
12 May 2005The Mayor of Toowoomba Councillor Diane Thorley launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk
Sent out 143 awareness letters to policitians
26 media releases for awareness week
April 2005Lyn Wilson attended Queensland Implementation Initiative for the Prevention and Management of Chronic Disease. – Queensland Health – Brisbane

10 August 2004Lyn Wilson did ME/CFS/FM Awareness talk Lions Club of Toowoomba West
15 July 2004Moved into our new office thanks to the Sisters of Charity and St Vincent’s Hospital
5 June 2004Article Lyn Wilson need for an office Chronicle
12 May 2004The Mayor of Toowoomba Councillor Diane Thorley launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk
Sent out 143 awareness letters to politicians
26 media releases for awareness week
11 May 2004Mrs Miller (Bundamba – ALP) gave a talk in State Parliament on ME/CFS/FM
12 May 2003The Mayor of Toowoomba Councillor Diane Thorley launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk
Sent out 143 awareness letters to politicians
26 media releases for awareness week
1 March 2003Joan Sheath stepped down as editor of newssheet Lyn Wilson took over
20 November 2002Lyn Wilson did ME/CFS/FM Awareness talk in Victoria BC Canada
20 September 2002Lyn Wilson did ME/CFS/FM Awareness talk
12 May 2002The Mayor of Toowoomba Councillor Diane Thorley launched International ME/CFS/FM Awareness Week
Sent out 143 awareness letters to politicians
26 media releases for awareness week
22-29 September 2001Display at Centenary Heights High School
20 September 2001Article Dr David Eather Chronicle
18 August 2001Dr David Eather author “The Cause of CFS: Light at the End of the Tunnel”
3 June 2001Lyn Wilson had a meeting with the Premier, the Hon Peter Beatie and the Minister for Disabilities the Hon Trish Graham.
15 May 2001Lyn Wilson did a radio interview on the ABC
12 May 2001The Mayor of Toowoomba Councillor Diane Thorley launched International ME/CFS/FM Awareness Week Lyn Wilson did awareness talk
Sent out 143 awareness letters to politicians
26 media releases for awareness week
19 March 2001Lyn Wilson met with the Prime Minister, the Hon John Howard, Deputy Prime Minister the Hon John Anderson MP, the Hon Peter Costello MP, and the Hon Amanda Vanstone MP
15 March 2001Lyn Wilson became the Queensland Director of ME/CFS Australia
18 December 2000Joan Sheath was presented with an award for her work with ME/CFS/FM sufferers and our support group she was given the Commonwealth Recognition Award for Senior Australians
18 December 2000Joan Sheath retired but kept on doing the newssheet
22 August 2000USQ Nursing interview with sufferers of ME/CFS
10 July 2000Joan Sheath and Lyn Wilson met with Toowoomba Mayor, Councillor Diane Thorley
13 May 2000Joan Sheath attended ME/CFS Conference 2000 in Brisbane
12 May 2000Sent out 143 awareness letters to politicians
26 media releases for awareness week
8 May 2000Article Joan Sheath Chronicle